Frequently Asked Questions

Why is the FANS study important?

Researchers have found that 57% of Asian American women diagnosed with lung cancer have never smoked. In a separate study, 80% of Chinese women diagnosed with lung cancer have never smoked. The FANS study is investigating the possible causes of lung cancer among Asian women, such as secondhand smoke, genetics, and cultural factors.

How are study participants identified?

In California, state law requires that doctors, hospitals and other facilities that diagnose and/or treat cancer patients report to the California Cancer Registry (CCR). In accordance with state law, the CCR can be used for approved and qualified research studies. We identify study participants recently diagnosed with lung cancer from the CCR. The FANS Study Team follows all of the procedures and guidelines set forth by the CCR and UCSF to ensure that the rights and confidentiality of all our potential research participants are protected.

Study participants who are not diagnosed with lung cancer are encouraged to email us at [email protected] to express your interest in participating.

How can I participate?

You can email us at [email protected] or call us at 833-326-7883 to express your interest in participating. You can also reply if we contact you by mail.

How will my privacy be protected?

All information collected in this study will be used for our research only and will be kept confidential. To protect your privacy, you will be assigned a study number and your name will not be associated with your responses. Confidential information and details about the study will be kept in a secure database. Data will be limited to approved and trained study staff. No results will be published with identifying information attached. The UCSF Institutional Review Board (IRB) reviews research studies to ensure the protection of study participants.

How can I complete the FANS survey?

Participants have the option to complete the survey in one of three ways:

1) Online (with a computer or mobile device)

2) By mail with a paper survey

3) Through a phone call with one of our interviewers

 

How is FANS funded?

This study is being conducted by researchers at the University of California at San Francisco (UCSF), Davis (UCD), and Stanford University. It is funded by a grant from the National Institute of Minority Health and Health Disparities (NIMHD) under grant # 1R01 MD014859.